When Rojo and I met with his new developmental pediatrician (and she went through our story from the beginning), she asked a lot of questions about how things operate now for him, and for the family. I think she was trying to have the full picture in her head so she can advise us going forward, and I appreciate it. We aren't in crisis. I told her we weren't in crisis. I told her we used to be and now we're not, and really, we're just after staying the course we're on.
About every two minutes she said, "So, you've adapted..." or, "Wow, you've really adapted," or, "That's not a problem because you've adapted."
It's weird to watch someone reflect back to you your life as they see it, particularly an "expert." I would never have used the word "adapted" to describe what we've all done, but that's exactly what it is, we've adapted. Rojo has done his share of adapting, but by in large, STM, Woohoo, his family, friends and I, we've adapted. One might call it "giving up," but I am going to go big with adapted. Do the four of us ever go to a restaurant? No, we've "adapted." Do we ever go see a movie, or even sit around the flat screen together in our very own house? No, we've "adapted." There is very little about our lives that looks like everyone else we know, but we're so used to it now, it's our normal. Our at long last, adapted, accepted, at peace with, normal.