Wednesday, February 20, 2019

Annual Needs Assessment

Yesterday was Wil's annual needs assessment. Oregon has moved away from the ANA, and is now conducting the Oregon Needs Assessment, which, thankfully, only needs to be done every five years. "Unless that changes... you know how things are always changing," Wil's Personal Agent said.

Yes. I know how things are always changing.

What doesn't change is the PTSD the needs assessment activates. Because of the new tool, and new rules that come with it, Wil's PA came as support and for advocacy, but a second person came to administer the assessment. Through emails with the PA, I was well-prepared for what would happen, how long it would take, and what was expected from Wil. For the 100-minute appointment, Wil was asked to partake for 30. Much pre-paving and elaborate scheduling to assure he was well-fed, under-scheduled, etc. took place.

The PA and the assessor, in 30 minutes, got that. And more. They really saw and heard and gathered and gleaned. The three of us were able to finish the assessment without Wil, and there was a sense of teamwork, Team Wil. AND, Team Care.

If anything, the convincing was on their part. They could tell that there are a million-and-one ways I personally support Wil in a day, many I am not even aware of, because they've always been there.

This is my first experience in nearly 23 years, of being accurately, and fully seen and understood by an outsider.

It is empowering, humbling, liberating, validating, and a little unsettling. It's Brené Brown-level vulnerability.

I highly recommend it.

Friday, February 15, 2019


It's been awhile. Sorry about that. I've been working on a "new" memoir. "New" can only be said using quotation marks, as it's been many years in the making, but has been started and re-started, many times. I haven't quite landed on "it." I will know when I'm there, but the path is that of a maze: the dead ends are many, and the way through, not obvious.

Turned 56, yesterday. Closer to 60 than to 50 brings with it mixed emotions, mostly good. Our nest is full. Woohoo lives here again, and we are once again, a full-time family of four.

Been listening to Eckhart Tolle and Oprah's new podcast on A NEW EARTH: Awakening to Your Life's Purpose. I went through the original series they did together, many times. Life and times have changed, and it's almost like hearing it all again for the first time, but with a twist -that stir of remembering.

It occurs to me, not for the first time, that Wil does not have a Pain Body, nor an ego. He is not triggered. He does nothing because it makes him look/sound/seem good. He holds no grudges, no anxiety about his future (beyond what we're doing on Monday). He lives a life of presence and consciousness. He vibrates at a higher frequency than mere mortals. To have the opportunity to live with such an example, is an (exhausting) honor.

What else? Honey. Honey is the best. We believe Flicka brought Honey into our life, and we couldn't love her more. She is easy. Apart from the shedding, she is perfect. Woohoo recently took her to the Oregon Coast. If you're in need of a pick-me-up, watch this:


Driving a car without brakes--stopping the card Fred Flintstone style, new year at college with new roommates, a house so filled-to-over-flo...