Yesterday was Wil's annual needs assessment. Oregon has moved away from the ANA, and is now conducting the Oregon Needs Assessment, which, thankfully, only needs to be done every five years. "Unless that changes... you know how things are always changing," Wil's Personal Agent said.
Yes. I know how things are always changing.
What doesn't change is the PTSD the needs assessment activates. Because of the new tool, and new rules that come with it, Wil's PA came as support and for advocacy, but a second person came to administer the assessment. Through emails with the PA, I was well-prepared for what would happen, how long it would take, and what was expected from Wil. For the 100-minute appointment, Wil was asked to partake for 30. Much pre-paving and elaborate scheduling to assure he was well-fed, under-scheduled, etc. took place.
The PA and the assessor, in 30 minutes, got that. And more. They really saw and heard and gathered and gleaned. The three of us were able to finish the assessment without Wil, and there was a sense of teamwork, Team Wil. AND, Team Care.
If anything, the convincing was on their part. They could tell that there are a million-and-one ways I personally support Wil in a day, many I am not even aware of, because they've always been there.
This is my first experience in nearly 23 years, of being accurately, and fully seen and understood by an outsider.
It is empowering, humbling, liberating, validating, and a little unsettling. It's Brené Brown-level vulnerability.
I highly recommend it.
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1 comment:
I just saw this, Care. Wow! I'm so happy you had such and unexpected, exceptional experience.
It's all too rare.
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